When there is a full moon, I feel like a switch in my brain turns on lunatic mode. This doesn’t mean “crazy”, this means I react to the moon when it is full. It doesn’t matter how tightly I pull the curtains, wear night shades and put a pillow over my head (I do all these things), I am still electrified by the moon. It isn’t just my body that feels restless, my mind is running a mile a minute too. I attempt to sleep, I try to quiet my mind, but to no avail.
At some point, I usually accept the hand I’m dealt and give up my lofty dreams of sleep. My choices are; I can turn inward and clean the house, or I can log onto my computer and see what is going on in the world. The other night, I didn’t want to do either. Instead, I entertained the thoughts that roll across my mind. Not the usual laundry list of the day’s events, this time, I thought about Jessie.
People with Angelman Syndrome (AS) are known to have sleep disturbances and Jess is no exception. This last full moon, Jess slept soundly. It appears she isn’t as sensitive to the lunar changes as her mother. I wonder what it is that prevents her from sleeping?
For the longest time, I felt her seizures disrupted sleep. I’m sure this has played a role, but now I don’t think it was the only reason. What if she is just not able to turn her brain off?
When Jess was younger, she would have “private parties”. She would spend her night opening every drawer and rifle through her closet. By morning, her room would look like a rock star had just left their hotel. What’s fascinating is to my eye it was a mess, however, she knew where things were and could find them when asked.
Through the years, we had to follow a regime to encourage Jess to stay in bed. We lost sleep trying to make sure she went to sleep. Most children go through this phase. When your child has AS, they will wear you down to a nub. All you can do is hang in there and be consistent. Now when Jess feels restless, she turns the TV on. Like everyone else, I’m sure there are just times she can’t turn off her mind.