When Jess was 18 months, I saw her first seizure. It lasted for 5-10 seconds, her body stiffened. When I asked our neurologist if this were a seizure, she dismissed me and said I didn’t know enough to diagnose. Much later, I learned that these were tonic seizures. When Jess was in her late twos, everyone thought she was falling down because of her ataxic gait, but what we were seeing were atonic seizures. We were also daily witnessing absance seizures.
I did express my concerns with our neurologist about what I was seeing, however, at this time, with this doctor, it isn’t a seizure until the doctor sees the event or records it on on EEG. [Read more…] about And then there were the seizures