Tuesday, Jess had a full day at work. She chattered like a magpie as soon as she walked through the door, talking to me, to the cats and to herself. The best part about talking to yourself is that you know someone is listening and you always get the answer you want! These moments always make my spirits rise. This was a welcome sign after her weekend of sickness. But, during dinner, Jess pushed food around her plate, not good. The rest of the evening was uneventful. I crossed my fingers and prayed that we were out of the woods.
Around “I don’t know what time it was and it was freaking late”, Jess was heard running down the hall. Husband and I tag team and this was his turn. By the time I was more awake than asleep, I heard distress in his voice. Jess was not in a reasonable frame of mind and someone needed to go relieve the pitcher. Tag, I’m it. I followed Jess into the kitchen and handed her the talker. She glared at me and made for my hair. If Jess could talk, I’m sure she would have used some choice curse words. I’m sure she would of said “mother, how can you not see how I feel?”. The light bulb went off and then asked her if she wanted medicine and she nodded yes. Her shoulders relaxed and her tude changed. We then walked back to her room, turned the TV on for distraction and I just prayed whatever this was that it would pass.
At six a.m., I called her work to say she wouldn’t be coming in and then texted her driver. Jess was up by seven, took herself to the bathroom and produced the most sour smelling poo. I know, TMI, but this is the point I want to make. Behavior is closely related to the bowel. (There’s a classic joke that proves my point) A few times I’ve felt this type of abdominal pain, so I could empathize with her. It was obvious that the illness hadn’t completely run through her yet.
I don’t know if it is typical of someone with Angelman Syndrome, but when one thing goes wrong, Jess can’t focus on anything. When multiple issues arise, there is no clear course of action to take. Because Jess isn’t sick that often, it took me awhile to come up to speed and remember this. On a good note, I realized that Jess didn’t have any seizures, not even one. This is a first! Typically, when she was sick and or tired, seizures would rear their ugly head and add an unwanted layer of complexity.
Since Jess had rallied this morning and didn’t seem to be suffering from lack of good sleep, I decided keep her on the move and run errands. We went to the market, visited George, had the oil changed and then had the truck inspected before completing the last of the shopping.
What surprised me most about our outing was Jess was a helpful shopper. Sometimes she has that “I see it, I want it disease”, but not this time. The more we do, the better she seems to cope. Hopefully I am not jinxing myself, but I think we are finally on the other side.
Note to self:
- It is okay to do more for her when she is sick, however, stop falling into the trap of helping as she feels better. For anyone else, we can accept non-verbal gestures, however, for Jess, this is pure manipulation.
- there is always a reason for a behavior, you just have to sleuth it out.